Cape Hoarding Task Force formally joins county

“For more than six years, an ad hoc group of elder services and health professionals have been meeting to address hoarding…the group formally became a part of Barnstable County government after the Board of Regional Commissioners voted unanimously to make the task force part of the county’s Department of Health and Environment.”

This is exciting news for CCHTF and those who benefit from our support.  Read the full article 

 

Case Example: Hoarding Disorder from the Perspective of the Health Department

In the following case example, Meggan Tierney, Health Agent for the Town of Dennis, describes how the Health Department coordinated with other town agencies to successfully resolve a hoarding disorder complaint. The subject’s name has been changed to protect his identity.

Several years ago, the Health Department received a complaint of a hoarding situation from a Water Department employee. The Water Department was performing a routine meter reading at a single family home in Dennis. Needing to speak with the owner of the home, the employee knocked on the side entrance door of the home. The employee was able to see that the home was not being kept in a sanitary condition and referred a complaint to the Health Department.

Several attempts were made by Health Department staff to meet with the occupant of the home. Because the side entrance door was glass, staff could see into the kitchen and dining areas without entering the home. It was evident that there was hoarding and that a squalor situation existed. The galley type kitchen was passable only by a small path littered with papers and miscellaneous debris and the counters and appliances were stacked four to five feet high with belongings. The dining room was unrecognizable due to the amount of bins and belongings.

When we were finally able to speak with Tom, the occupant and owner of the dwelling, he was made aware of why the Health Department needed to access the home. Tom was an elderly man living alone. Our first impression of Tom was that he was a lonely man with possible mental and physical health issues. During our first meeting, Tom would not allow us into the home; he did however acknowledge his issue with trash removal. The kitchen contained many expired and rotting food items, old papers, and other garbage. The yard also contained trash and debris. Tom was willing to clean up the trash inside and out and we gave him one week to complete the task.

Needless to say, Tom did not comply with the order to clean up the trash inside or outside of the home. At this point, we felt that order letters and being “heavy handed” would not produce a successful outcome in this case. We made a referral to Protective Services and the Council on Aging (COA). The case was also presented to the Cape Cod Hoarding Task Force for opinions and assistance. Elder Services found Tom competent and able to make decisions. Tom refused their services; therefore they closed his case shortly after the referral.

Over the course of several months, the COA was able to make regular visits with Tom. We were able to fully inspect the dwelling and make a list of violations that were to be corrected in order to meet the Sanitary Code. There were many months of “two steps forward and three steps back”. Tom was willing to be a recipient of the “Big Fix” campaign which helped him get the exterior of the home cleaned up and repaired.

Tom’s insurance policy did not cover a home health aide or any type of cleaning services; therefore, funds were obtained through COA which allowed for a cleaning company to assist with a full clean out and weekly visits to ensure regular maintenance and upkeep. Tom was cooperative and grateful for the service, even though it has always been difficult for him to let things go. The clean out company and the COA have been able to help Tom organize his belongings and keep hallways and countertops clear.

It has been over two years since this case was opened. As with most hoarding cases, it has been extremely time consuming and required collaboration with several agencies. Once the squalor and immediate safety violations were corrected in this case, we stopped issuing order letters. We felt that Tom was cooperating with us to gain full compliance and further order letters would only put our Department in an impossible situation to regulate. Tom was getting the help he needed through COA and the home clean up company. Email communication and phone calls between the Health Department and the other agencies involved have minimized the amount of time we have needed to spend at this particular home.

Hoarding cases by nature usually require social services. Personally speaking, Health Departments should leave the mental/social work to the professionals; they are trained to deal with it. As Health Agents, we are compliance driven; we look for results within an allotted time frame. Our Codes and Regulations dictate the actions we need to take in order to comply. Often times, hoarding cases last well beyond the timeframe of any order letter we issue. Patience and multi-agency involvement are keys to a successful conclusion to a hoarding case.

“But she is 92 and I didn’t want to embarrass her!”

After visiting the home of a 92 year old woman with hoarding disorder, Barbara-Anne Foley, Director of the Harwich Council on Aging, became very ill. She shares her story below.

In May 2014, I was asked to visit the home of woman with hoarding disorder to see if we could convince her to accept both medical and clean-up assistance. I knew the home was in “squalor” condition but I never considered wearing protective equipment because the occupant was 92 years old and I didn’t want to embarrass her. A few days after our meeting, I began to experience respiratory symptoms that didn’t go away. When I met with my primary care physician and told him about the condition of the home, he ordered a chest X-ray to be sure I wasn’t exposed to mold. The chest X-ray came back normal. Shortly after, I had significant swelling in my arms and legs, experienced pain when I walked, and my skin was itchy and shiny red. I then lost all range of motion in my arms and legs.

After three months of testing to determine the cause of my symptoms, finishing with an MRI and a deep tissue biopsy in my right arm and leg, I was given the diagnosis of eosinophilic fasciitis. Eosinophilic fasciitis is a very rare medical condition – only 300 people in the world are diagnosed with it – and, in my case, it was caused by a toxic environment.

As a result of this condition, my small airways now function at 77% of capacity and my large airways function at 85% of capacity. In addition, for a minimum of one year I have to wear compression sleeves on my arms and compression stockings on my legs every day, attend physical therapy 3 times a week to try and regain range of motion in my arms and legs, and take high doses of Prednisone. The side effects of the Prednisone alone are unfathomable, making every day a new challenge.

If I had worn, or was required by my employer to wear, Personal Protective Equipment (PPE) to this home, I would not be suffering from this condition. I urge you to learn from my experience and wear personal protective equipment because it could save your health! I also encourage you to ask your employer to develop a formal policy around wearing PPE in squalor conditions.

It may be uncomfortable to broach this topic with a homeowner, but referring to the PPE as precautionary and the “policy of your employer” might make it easier.

Mid-Cape Hoarding Task Force is now Cape Cod Hoarding Task Force

BARNSTABLE, Mass. (August 31, 2012) — Researchers estimate there are more than 6 million people with clinically significant hoarding problems in the United States (equivalent to the population of the entire state of Massachusetts). OCD Massachusetts is pleased to announce that the Mid-Cape Hoarding Task Force has changed its name to Cape Cod Hoarding Task Force (CCHTF) to reflect that the task force now serves and includes partners from the entire Cape region. Since its inception two years ago, the Cape Cod Hoarding Task Force has been committed to providing resources and quality programming to meet the needs of the Mid-Cape — and now entire Cape Cod — community.

Hoarding is a related disorder to obsessive compulsive disorder (OCD), and is often treatable when properly diagnosed — but it takes more than just an effective therapist to address the problem. People with hoarding disorder acquire more possessions than they can afford or manage, have great difficulty discarding items they don’t or can’t use, and have trouble organizing things in a useful way. Their living spaces are often so cluttered that they can no longer use rooms, furniture, appliances and/or other objects for what they were originally intended.

“Hoarding may seem like a rare condition, but it demands attention because of its high costs — both financial and emotional,” explains Denise Egan Stack, LMHC, President of OCD Massachusetts and CCHTF steering committee member. “In extreme cases, fire and safety officials must intervene, sometimes removing the person from his/her home. These events can be emotionally devastating for the person with hoarding problems.”

Because hoarding cases typically involve help and expertise from multiple government agencies, including social services, elder services, public health officials, and fire and safety officials, the most effective way to address hoarding issues is to through the creation of a task force. The common purpose of all task forces is to provide a directed and managed response to hoarding cases that come to public attention. Whether in large cities or in small towns, task forces organize and provide public education about hoarding, give out service agency information, offer trainings and give support to families.

“For years, municipal agencies have struggled to deal with this public health issue independently,” explains Lee A. Mannillo, chairperson of the Task Force. “The Cape Cod Hoarding Task Force has worked to coordinate a multi-agency approach which has improved outcomes for many people in need.”

In addition to developing a web site (www.hoardingcapecod.org), the Cape Cod Hoarding Task Force has developed relationships with like-minded task forces around the state, worked with various media outlets to raise awareness in the community about hoarding, coordinated local agencies to implement joint service plans, and helped many local families. Recently, the task force hosted a screening of the movie My Mother’s Garden, a documentary about compulsive hoarding, to help educate the community. The Cape Cod Hoarding Task Force is currently planning many more programs, including a seminar this fall to discuss legal issues related to hoarding.

Please join the Cape Cod Hoarding Task Force at their next meeting at 9:30am on September 13, 2012. The group will meet in the Harborview Meeting Room, Old County Jail House, 3195 Main Street, Barnstable, MA 02630. Professionals who work with hoarders are especially encouraged to attend.

About OCD Massachusetts

Founded in 1986, this local affiliate of the International OCD Foundation serves individuals with OCD and related disorders, and their loved ones, in the commonwealth of Massachusetts. The mission and of OCD Massachusetts is to educate the public and professionals about OCD in order to raise awareness and improve the quality of treatment provided in Massachusetts; improve access to resources for those with OCD and their families in Massachusetts, and advocate and lobby for the OCD community in Massachusetts.

My Mother’s Garden- Movie Viewing

Friday, March 9, 2012 @ 9 AM
Cape Cod Community College, Tilden Arts Center

My Mother’s Garden portrays one woman’s acute case of Compulsive Hoarding Disorder and the conflict she and her family must undergo to rise above it. The film depicts her extreme attachment to material objects, her emotional struggle to let go of them, the family’s intervention, as well as the painful yet healing conclusion.

Watch the Documentary @ msnbc